Visits to the doctor can sometimes feel rushed and stressful. It’s not always easy to know or remember what questions to ask. To get the information you need, it’s helpful to have a family member or friend accompany you to help ask questions and remind you of what the doctor said during the visit.
Below is a list of commonly asked questions. Depending on your stage of age-related macular degeneration (AMD)—and whether it is the "dry" or "wet" form of the disease—some questions will be more relevant than others. Since a very long list of questions could be difficult for you and the doctor to discuss fully in the time available, you might want to pick your top four or five questions for each visit.
When is the best time to ask questions? After your examination and tests, such as retina photographs, your doctor will share the results and any recommendations. This is an optimal time to ask questions.
1. What is my risk of losing reading vision in the next 5 years?
Many patients with early AMD, with drusen (little white spots under the retina visible to the ophthalmologist) have an excellent chance of keeping reading vision for the next 5 years and beyond. The risk can be estimated based on the number and size of drusen, the presence of other pigment abnormalities in the retina (view an illustration of eye anatomy ), and the status of the other eye. Even patients with wet AMD, if treated within a few days to weeks after the onset of symptoms, have a good chance of keeping reading vision if treated with injections.
- Why is My Doctor Always Talking About “Drusen”? (Expert Article)
- Monitoring the Progression of Dry AMD (Expert Article)
2. Would cataract surgery help me see better?
Sometimes a cataract, a clouding of the lens in inside the eye, can interfere with vision. In a patient with AMD, it is not so easy to determine whether a cataract or the macular disease is responsible for reduced vision. Often, both conditions contribute. The key question is how much better the vision could be after cataract surgery.
- Cataracts and Macular Degeneration (Expert Article)
3. Would new glasses help me see better?
Patients with AMD can often benefit from new glasses, especially for reading small print. These glasses will magnify letters, making them easier to read. It is critical that eyeglass prescriptions are as good as possible. Special reading glasses with built in prisms provide a high level of magnification and sometimes yellow-tinted lenses can help increase contrast.
- Finding an Eye Doctor (Article)
- Learn About Low Vision Therapists (Audio and Transcript)
- Therapy for Low Vision: The Role of Optometrists (Video)
4. Should I see a low vision specialist?
If visual tasks remain a problem after the visit to the ophthalmologist, you may want to see an optometrist who specializes in low vision, who might find the optimal glasses magnification, and may recommend special devices like optical or digital magnifiers. A professional known as a low vision therapist can help your remain as independent as possible by advising you on safety-proofing your home, and on the latest devices and tips for living with low vision.
- Macular Degeneration: Low Vision Tips (Expert Article)
- The Eye Exam for Macular Degeneration (Article)
- Low Vision Therapy: What You Should Know (Audio and Transcript)
- How to Remain Independent Despite Low Vision (Audio and Transcript)
- Tips for Living with Low Vision (Audio and Transcript)
- Low Vision Therapy: Creating a Safe Home (Audio and Transcript)
5. Am I eligible for any clinical trials?
This is a time of rapid advances in AMD research. There are several drugs in clinical trials for both wet and advanced dry (geographic atrophy) AMD. If you are eligible, participating in clinical trials could help your vision in the short or long term, and could help make new treatments available for others in the future.
- Clinical Trials (Background Information)
- Clinical Trials for Macular Degeneration (List of Open Clinical Trials)
6. Should I be taking AREDS2 vitamins?
Depending on the number and size of your drusen, it may be helpful to take AREDS2 vitamins. For people with any form of AMD, it is helpful to eat a diet rich in vegetables, as well as some fruits and fish.
- Are You Getting What You Need from Your AREDS Supplements (Science News)
- Top Foods for Eye Health (Expert Article)
7. Regarding, wet AMD, is it possible to get injections less often?
Some patients with wet AMD require an injection every 4 weeks to maintain their best possible vision. Others can do almost as well with less frequent injections. This is a trade-off to discuss with your doctor based on your specific situation and the doctor’s experience and judgement.
- Injections for Wet Macular Degeneration: What to Expect (Expert Article)
- Treatments for AMD (Fact Sheet)
8. Should I be driving?
Some patients with AMD, unfortunately, get into accidents because of their visual impairment. It is difficult to give up the independence that driving provides. However, it is not worth the risk of injuring yourself and others. Adjustments to lifestyle should be made.
- Safety and the Older Driver (Publication)
- Retiring from Driving: How to Make the Change (Expert Article)
- Driving Safety and Transportation Alternatives (Audio and Transcript)
9. What can my siblings and children do to reduce their risk of developing AMD?
Siblings and children of AMD patients have, on average, approximately twice the risk of developing AMD. To reduce their risk, they can avoid or quit smoking, eat a veggie rich diet with some fruits and fish, and wear sunglasses and a hat when outside in bright light.
- A Close Relative Has AMD: How Can I Decrease My Risk? (Expert Article)
- Prevention of Macular Degeneration (Expert Article)
10. What new symptoms should prompt a call to your eye doctor?
Your doctor will ask you to check your vision at home to help detect any new onset of wet AMD. You should do this by covering one eye at a time (the “good” eye will compensate so you might not notice any change in the diseased eye) and looking at some reading material or a graph like an Amsler grid every few days. If you notice a change like blurry, wavy, or missing lines or letters, give your eye doctor a call. There may be additional concerning symptoms that your doctor will tell you about, depending on your situation.
- The Signs and Symptoms of Macular Degeneration (Article)
- Less Common Symptoms of AMD (Expert Article)
Other Helpful Resources
- Macular Degeneration Toolkit (Helpful Information to Understand and Manage Macular Degeneration)
- Expert Information on Macular Degeneration (Articles)
- BrightFocus Chats (Audio Presentations on Macular Degeneration)
- Macular Degeneration Research News (Newsletters)
- Macular Degeneration: Essential Facts (Publication)
- You and Your Eye Exam: What to Know, What to Ask (Audio and Transcript) \
- Making the Most of Your Next Doctor Visit (Audio and Transcript)
- A Guide to Finding the Right Eye Doctor (Expert Article)
- Normal Macula (Medical Illustration)
- Dry Macular Degeneration (Medical Illustration)
- Wet Macular Degeneration (Medical Illustration)
- A Look at Macular Degeneration (“SnapShot” Infographic)
This content was last updated on: November 16, 2020
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