Fact Sheet

Alzheimer's Disease Resources for Patients and Caregivers

This list is compiled by Alzheimer’s Disease Research, a BrightFocus Foundation program.


Nonprofit, Government, and Professional Services

Alzheimer’s Disease Research
A BrightFocus Foundation program supporting research and public awareness on Alzheimer’s and related dementias.
www.brightfocus.org/alzheimers 1-855-345-6237
Publications and resources include:

  1. Understanding Alzheimer’s Disease: It’s Not Just Forgetfulness
  2. Managing Stress: Care for the Caregiver
  3. Alzheimer’s Disease Research Review (newsletter)
  4. Clinical Trials: Your Questions Answered
  5. Fact sheets on treatments, healthy living, frequently asked questions, and more

Please note: The following organizations are not affiliated with BrightFocus Foundation and we do not endorse any programs or products offered. Some of the organizations may charge fees for their services and advice.

Alzheimers.gov. Provides free information about Alzheimer’s disease compiled by the
U.S. Department of Health & Human Services including treatment options, Medicare coverage, and referrals to local community resources.
www.alzheimers.gov 1-877-696-6775

Alzheimer’s and related Dementias Education and Referral Center (ADEAR). Provides current Alzheimer’s disease information and resources from the National Institute on Aging. Offers information for people with Alzheimer’s disease, their families, and professionals, including information on clinical trials. www.nia.nih.gov/alzheimers
1-800-438-4380

American Academy of Neurology. Provides a Find a Neurologist service by subspecialty, name, or area.
brainandlife.org 1-800-879-1960

BenefitsCheckUp. Service of the National Council on Aging (NCOA) that helps people to understand benefits available from federal, state, and local programs. www.benefitscheckup.org
571-527-3900

Center for Medicare and Medicaid Services (CMS), U.S. Department of Health & Human Services. Provides the latest information and resources on government- sponsored health programs, including:
Medicare, which is a federal program that provides some coverage for people who meet certain qualifications. Alzheimer’s disease is not listed as a specific condition covered, but many aspects of treatment may be covered.
Medicaid programs, which are run by individual states. CMS at 1-800-633-4227

Dementia Friendly America. A national collaborative to foster communities that are equipped to support people with dementia and their caregivers by becoming “dementia friendly.”
www.dfamerica.org

LeadingAge. Provides a searchable database of aging services, including assisted living, nursing care, and home meal delivery.
www.leadingage.org 202-783-2242

Meals on Wheels Association of America. Provides information on local meal delivery and group meal locations for seniors. www.mealsonwheelsamerica.org
1-888-998-6325

National Adult Day Services Association. Provides a searchable database of adult day services in your area.
www.nadsa.org 1-877-745-1440

National Center for Assisted Living. Represents long-term care providers; contains information for consumers on assisted living.
www.ncal.org 202-842-4444

National Institute of Neurological Disorders and Stroke, National Institutes of Health. Provides general information on Alzheimer’s disease websites and offers publications on its Alzheimer’s page.
www.ninds.nih.gov 1-800-352-9424

Social Security Administration (SSA). Provides financial benefits to qualified individuals.
www.ssa.gov
1-800-772-1213

Legal and Financial Assistance

National Center on Elder Abuse. Serves as a national resource center dedicated to the prevention of elder mistreatment, addressing topics such as assisted living and financial exploitation.
https://ncea.acl.gov/ 1-855-500-3537

National Hospice and Palliative Care Organization. Provides free resources to help people make decisions about end-of-life care and services before a crisis. Topics include advanced directives, and hospice and palliative care, among others. www.caringinfo.org
1-800-658-8898
Multilingual helpline: 1-877-658-8896

National Long-Term Care Ombudsman Resource Center. Click “Locate an Ombudsman” to find a professional to serve as an advocate as you deal with decisions concerning long-term care for your loved one. www.ltcombudsman.org
202-332-2275

Transportation Safety Administration (TSA) Cares. Assists travelers with medical conditions, such as Alzheimer’s disease, as they prepare for travel prior to getting to the airport. Provides answers to questions about screening policies, procedures, and what to expect at the security checkpoint.
www.tsa.gov/travel/special-procedures 1-855-787-2227

Veterans Benefit Programs. Those who served in the armed services may qualify for certain Veterans Administration program benefits.
To find out what services are covered by Medicare, Medicaid, Social Security, or Veterans programs, visit
www.brightfocus.org/alzheimers/financial-aid

Or call:
CMS at 1-800-633-4227,
SSA at 1-800-772-1213,
Veterans Benefits at 1-800-827-1000

Products and Services

AngelSense. The AngelSense solution provides caregivers a comprehensive view of their loved one’s activities, comings and goings.
www.angelsense.com 1-888-999-2023

The Alzheimer’s Store. Products for people with Alzheimer’s disease and for those caring for them.
www.alzstore.com 1-800-752-3238

Home Instead Senior Care. Some of the services offered include: personal care, hospice care, and memory care training in collaboration with experts on Alzheimer’s disease and dementia. While the tasks of each service might differ, the goal for all types of care remains the same: enhancing the lives of seniors and their families. www.homeinstead.com/alzheimers
888-330-8210

MedicAlert Foundation International. Offers emblems and chains engraved with the person’s membership number, primary medical conditions, and the toll-free 24-hour Emergency Response Center number. MedicAlert allows the person to be identified, and can relay key medical facts and notify family contacts.
www.medicalert.org 1-800-432-5378

Project Lifesaver. The program is comprised of components specifically designed to protect “at risk” individuals and offers wearable locating technology. https://projectlifesaver.org
1-877-580-5433

This content was first posted on: November 20, 2018

The information provided is a public service of the BrightFocus Foundation and is not intended to constitute medical advice. It should not in any way substitute for the advice of a qualified healthcare professional. Please consult your physician for personalized medical advice; all medications and supplements should only be taken under medical supervision. BrightFocus Foundation does not endorse any medical product or therapy.

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