Helpful Resources for Glaucoma

We at the BrightFocus Foundation compiled this list of organizations that can help people with glaucoma.

The following organizations are not affiliated with BrightFocus. BrightFocus is not responsible for the content of these websites and does not endorse or recommend any particular program offered by these organizations.

On this page, you’ll find:

  • Caregiving and Caregiver Support
  • Eye Care Professional Organizations
  • Federal Government Programs and Services
  • General Information, Resources and Referrals
  • Home Safety and Low-Vision Aid Resources
  • Legal Assistance
  • Low Vision Organizations
  • Print and Audio Materials for the Visually Impaired
  • Research and Clinical Trials
  • Senior Housing
  • State and Local Resources

Caregiving and Caregiver Support

Aging Life CareTM Association

ALCA was formerly the National Association of Professional Geriatric Care Managers (GCM). Find health and human services specialists to help families care for older relatives while encouraging as much independence as possible. Use the database to find a geriatric care manager.

Caregiver Resource Center (a division of Employee Assistance Professionals, Inc.)

The center provides information on caregiving, employee assistance, and planning for long-term care services.

www.caregiverresourcecenter.com
203-861-9833

CarePathways

This support service was created and maintained by registered nurses to provide access to health care information, products, and services.

www.carepathways.com
1-877-521-9987

ElderCare Online

This online caregiver support group provides information and a directory of support groups.

www.ec-online.net

Family Caregiver Alliance (FCA) and National Center on Caregiving

Online center provides information, education, services, research, and advocacy for those caring for people with chronic, disabling health conditions.

www.caregiver.org
1-800-445-8106

Meals on Wheels America

This national organization provides information on local meal delivery and group meal locations for seniors, at more than 5,000 community-based senior nutrition programs nationwide.

www.mealsonwheelsamerica.org
1-888-998-6325

National Adult Day Services Association (NADSA)

Use the website database to find adult day services.

www.nadsa.org
1-877-745-1440

National Caregivers Library

An extensive online library for caregivers provides articles, forms, checklists, and links to topic-specific external resources.

www.caregiverslibrary.org
804-327-1111

National Center for Assisted Living (NCAL)

National association represents long-term care providers and provides information for consumers about assisted living.

www.ncal.org
202-842-4444

Well Spouse® Association

National association provides peer support and education about the special challenges facing "well" spouses who care for ill spouses.

www.wellspouse.org
1-800-838-0879

Eye Care Professional Organizations

American Academy of Ophthalmology

A national membership association of eye doctors provides a searchable database of ophthalmologists and eye specialists by state and locality. The AAO EyeSmart website includes information on eye health and other eye-related topics.

www.aao.org
415-561-8500
www.GetEyeSmart.com
415-447-0213

American Optometric Association

An organization of eye care professionals serves patients in nearly 6,500 communities across the country.
www.aoa.org

1-800-365-2219

Federal Government Programs and Services

Administration on Aging, U.S. Department of Health and Human Services (DHHS)

A starting point for information on aging for elders and families, this federal agency  promotes the well-being of older individuals by providing services and programs designed to help them live independently in their homes and communities.

www.aoa.gov
202-619-0724

Benefits.gov

Official benefits site of the federal government provides information on more than 1,000 benefit and assistance programs.

www.benefits.gov
1-800-333-4636

Centers for Medicare and Medicaid Services, U.S. DHHS

This federal website provides the latest information and resources on Medicare and Medicaid.

www.cms.gov
1-800-633-4227

Disability.gov

This federal websites provides an online database of disability resources, including benefits, civil rights, education, employment, housing, health, technology, and transportation.

www.disability.gov
1-800-333-4636

Eldercare Locator

This searchable directory of state and local area agencies on aging and community-based organizations serves many elder care needs. Spanish-speaking information specialists and language interpretation service for 150 languages are available during business hours.

www.eldercare.gov
1-800-677-1116

Healthfinder.gov

A DHHS-sponsored online resource on health topics from 1,400 government and nonprofit organizations provides reliable health care information and access to other online sources.

www.healthfinder.gov

National Eye Institute

Part of the National Institutes of Health, this institute supports eye disease and vision research. The agency develops public and professional education programs to help prevent blindness, reduce visual impairment, and increase awareness of low-vision services and devices.

www.nei.nih.gov
301-496-5248

National Institute on Aging

Part of the National Institutes of Health, this institute conducts and supports biomedical, social, and behavioral research and provides public education to promote healthy aging.

www.nia.nih.gov
nihseniorhealth.gov

1-800-222-2225
1-800-222-4225 (TTY)

National Library Service for the Blind and Physically Handicapped

The Library of Congress provides free Braille and recorded materials and lends playback equipment to eligible borrowers through a network of cooperating libraries. Books and magazines in recorded form (talking books) or in Braille are delivered and returned by postage-free mail.
www.loc.gov/programs/national-library-service-for-the-blind-and-physically-handicapped/about-this-program/

1-888-NLS-READ (657-7323)

Social Security Administration (SSA)

The SSA is the federal agency responsible for providing financial assistance to those who are legally blind or have vision problems that prevent them from employment.
www.ssa.gov

1-800-772-1213
1-800-325-0778 (TTY)

General Information, Resources, and Referrals

All About Vision

Online resource provides consumers with an independent source of trustworthy information on eye health, vision correction options, and eye diseases including cataracts, glaucoma, and macular degeneration.

www.allaboutvision.com
858-454-2145    

Alliance for Aging Research

Nonprofit organization advocates for research and provides information on age-related medical discoveries and health topics.

www.agingresearch.org
202-293-2856 

American Association of Retired Persons (AARP)

Nonprofit membership organization serves people 50 and older.

www.aarp.org
1-888-OUR-AARP (687-2277)
1-877-434-7598 (TTY)
1-877-342-2277 (Spanish)

American Federation for Aging Research (AFAR)

Nonprofit supports the science of healthier aging by providing grants to more than 2,800 talented scientists, and provides information on healthy lifestyles, age-related conditions, and diseases and biology of aging.

www.afar.org
1-888-582-2327 

National Council on Aging

Nonprofit provides information on healthy aging, independent living, and government and private benefits programs, and includes news updates of interest to seniors.

www.ncoa.org
571-527-3900

Senior Citizens Bureau

The nonprofit community resource provides information for seniors and their caregivers about government programs, counseling, housing, and more. The website has an online state-by-state directory for many services.

www.seniorcitizensbureau.com
1-800-281-1088

Home Safety and Low-Vision Aid Resources

AbleData

Part of the U.S. DHHS, this organization provides impartial information on assistive technology and rehabilitation equipment from domestic and international sources.

www.abledata.com
1-800-227-0216

Ai Squared

This company develops and sells screen magnification and screen reading software products for people who are visually impaired.

www.aisquared.com
1-800-859-0270

Beyond Sight

This company offers a wide variety of items for people who are visually impaired, including computers, talking clocks, kitchen items, magnifying glasses, and closed-circuit TVs.

www.beyondsight.com
303-795-6455

Enhanced Vision Systems

The business offers a full line of vision tools and magnifiers.

www.enhancedvision.com
1-888-811-3161

Freedom Scientific

Company provides assistive and adaptive low-vision technology, including portable and desktop video magnifiers, and magnification and screen-reading software.

www.freedomscientific.com
1-800-444-4443

G. W. Micro

Now part of Ai Squared, this company offers software and hardware solutions for people who are blind and visually impaired.

www.gwmicro.com
802-362-3612

HomeMods.org

A service of the Fall Prevention Center of Excellence and funded by the Archstone Foundation, the website provides information on modifying homes to make them safer for people at risk for falls and other injuries, with specifics for individuals, families, service providers, and researchers.

www.homemods.org
213-740-1364

HumanWare

Company designs and manufactures technology solutions, including the SmartView™ video magnifier for people who are visually impaired.

www.humanware.com
1-800-722-3393 

Independent Living Aids, LLC

This business offers a catalog of low-vision products.

www.independentliving.com
1-800-537-2118

Innoventions, Inc.

This company develops and makes the Magni-CamTM electronic magnifier.  

http://www.aph.org/products/magnicam.html
1-800-854-6554

JBliss Low Vision Systems

Company sells software and electronic equipment for portable and at-home magnification of texts and pictures via cameras, scanners, and more.

www.jbliss.com
650-326-1235

LS&S

This company offers a catalog of products for people with low vision and/or impaired hearing.

www.lssproducts.com
1-800-468-4789

Maxi Aids

Business offers a variety of low-vision and home health care products.

www.maxiaids.com
1-800-522-6294
1-800-281-3555 (TTY)

MedicAlert Foundation

This organization provides medical IDs engraved with the person’s membership number, primary medical conditions, and toll-free, 24-hour number for emergency response service. First responders and health professionals call the number to get vital medical information to ensure proper treatment and care. Caregivers are called in an emergency.

www.medicalert.org
1-888-633-4298

MONS International, Inc.

Company offers products for people who are visually impaired, including Braille watches, talking calculators, 4-track recorders, kitchen aids, writing guides, computer software and accessories, greeting cards, and talking scales.

www.magnifiers.com/catalog/specials.php
1-800-541-7903

Ocutech, Inc.

Business sells various types of magnifier attachments to enhance the vision of people who are partially sighted, and produces the VES AutoFocus telescope.

www.ocutech.com
1-800-326-6460

Vision Cue

This company sells Braille, low-vision, and speech products from a variety of manufacturers.

www.visioncue.com
1-888-318-2582

Legal Assistance

American Bar Association (ABA)

National association provides information to help find legal assistance and locate lawyers. Includes specific information about the legal issues of aging.

www.americanbar.org
www.americanbar.org/groups/law_aging.html
1-800-285-2221

ElderLawAnswers.com

Website provides news and explanations of Medicaid coverage of long-term care, Medicare benefits, estate planning, guardianship, and other legal issues affecting seniors. It also offers a nationwide network of pre-screened attorneys who focus their practices on helping the elderly.

www.elderlawanswers.com
1-866-267-0947

National Academy of Elder Law Attorneys

Use the database to find an elder law attorney in the private or public sector who deals with legal issues affecting the elderly and disabled.

www.naela.org
703-942-5711

National Center on Elder Abuse

Sponsored by the federal government, this national resource center is dedicated to the prevention of elder mistreatment. It provides research, training, best practices, news, and resources on elder abuse, neglect, and exploitation.

www.ncea.aoa.gov
www.ncea.aoa.gov/stop_abuse/get_help/state/index.aspx
1-855-500-ELDR (3537)

Low-Vision Organizations

Low-Vision Rehabilitation Centers

Your ophthalmologist or local hospital can help you locate low-vision rehabilitation centers in your area. They evaluate and train people with low vision and offer devices and services.

American Council of the Blind

This nonprofit provides a wide variety of services to visually impaired people with an emphasis on employment opportunities.

www.acb.org
1-800-424-8666

Association for Education and Rehabilitation of the Blind and Visually Impaired

Engaged in the education, guidance, vocational rehabilitation, or occupational placement of the blind and partially sighted, this organization conducts certification programs, maintains job exchange services, and advocates for legislation affecting services to the blind and visually impaired.

www.aerbvi.org
1-877-492-2708

The Braille Institute of America

Nonprofit offers free classes, training, and a variety of other services and activities for those with blindness and severe sight loss.

www.brailleinstitute.org
1-800-272-4553

Columbia Lighthouse for the Blind

Nonprofit offers programs that enable the blind or visually impaired to remain independent, including early intervention services, training and consultation in assistive technology, career placement services, comprehensive low-vision care, and rehabilitation services.

www.clb.org
202-454-6400

Helen Keller Foundation

This foundation strives to prevent blindness and deafness by advancing research and education efforts.

www.helenkellerfoundation.org
256-810-5411

Lighthouse International

Nonprofit that provides education and vision rehabilitation services, and supports research and advocacy.

www.lighthouse.org
1-800-829-0500

Macular Degeneration Support

Website provides information for those with macular degeneration and other retinal diseases, and assistance in forming and running support groups.

www.mdsupport.org
816-761-7080 

National Federatin of the Blind

Organization provides advocacy, education, research, technology, and programs encouraging independence and self-confidence for the blind.

www.nfb.org
410-659-9314

The Seeing Eye

Organization breeds and trains guide dogs to help blind people, and trains blind people in how to care, use, and handle guide dogs.

www.seeingeye.org
973-539-4425

VisionAware

Partnership between the American Foundation for the Blind (AFB) and Reader's Digest Partners for Sight Foundation provides resources for living independently with vision loss.

www.visionaware.org
1-800-232-5463

Print and Audio Materials for People Who Are Visually Impaired

American Printing House for the Blind

National nonprofit creates educational, workplace, and independent living products and services for people who are visually impaired.

www.aph.org
1-800-223-1839

Associated Services for the Blind and Visually Impaired

Nonprofit provides Braille, tape, and large-print materials for people who are blind and visually impaired.

www.asb.org
215-627-0600

Books on Tape

Company produces, rents, and sells unabridged audio books on CDs and as audio downloads.

www.booksontape.com
1-800-733-3000

International Association of Audio Information Services

This worldwide organization of more than a hundred independent Audio Information Services provides printed material in audio form.

www.iaais.org
1-800-280-5325

Learning Ally

Formerly known as Recording for the Blind & Dyslexic (RFB&D), this organization provides free recorded educational books for those with blindness, visual impairment, dyslexia, or other learning disabilities. The master library contains more than 75,000 titles.

www.learningally.org
1-800-221-479

NFB-NEWSLINE®

This free nationwide telephone newspaper service for the blind and visually impaired is offered by the National Federation of the Blind.

nfb.org/audio-newspaper-service
1-866-504-7300

National Library Service for the Blind and Physically Handicapped

Sponsored by the U.S. Library of Congress, this service provides free Braille and recorded materials and lends playback devices to eligible borrowers through a network of cooperating libraries. Books and magazines in recorded form (talking books) or in Braille are delivered and returned by postage-free mail.

www.loc.gov/nls
1-888-657-7323

Research and Clinical Trials

CenterWatch Clinical Trials Listing Service

This service provides information on clinical research, including listings of active industry and government-sponsored clinical trials, research on new drug therapies, and drugs recently approved by the U.S. Food and Drug Administration.

www.centerwatch.com
1-866-219-3440

National Institutes of Health, National Eye Institute, National Institute on Aging

ClinicalTrials.gov provides patients, their family members, and the public with easy and free access to information on clinical studies for a wide range of diseases and conditions. NEI and NIA highlight clinical trials sponsored by those institutes.

www.clinicaltrials.gov
nei.nih.gov/health/clinicalstudies/

1-800-411-1222
www.nia.nih.gov/health/publication/clinical-trials-and-older-people

1-800-222-2225
1-800-222-4225 (TTY)

ResearchMatch

Free, secure registry brings together people who are trying to find research studies with researchers who are looking for people to participate in their studies.

www.researchmatch.org

Housing for Low Vision Seniors

A Place for Mom

Senior Living Advisors help people find senior living arrangements and information about issues that affect caregivers.

www.aplaceformom.com
1-877-666-3239

LeadingAge

Formerly the American Association for Homes and Services for the Aging, this network of aging services, state partners, and hundreds of businesses, consumer groups, foundations, and research partners provides information about services and care facilities for elders.  

www.aahsa.org
202-783-2242

Commission on Accreditation of Rehabilitation Facilities

This organization accredits rehabilitation facilities, has a searchable database of accredited providers, and provides guidance for accessing family, health, senior and aging, and employment services.

www.carf.org
1-866-888-1122

Helpguide.org

Organization provides trustworthy information on caregiving, long-term care, and housing in the “After 50” section of its website.

www.helpguide.org

HousingForSeniors.com

Company provides searchable directory for senior housing and residential care options.

www.housingforseniors.com

RetirementHomes.com

Business provides a directory of senior housing options in the United States, Canada, and the United Kingdom.

www.retirementhomes.com
1-888-544-9124

seniorDECISION.com

Website provides searchable list of home health care and senior housing options by state and area, with consumer ratings and reviews.

www.seniordecision.com

State and Local Resources

Health Care Professionals

Health care providers (physicians, eye doctors, nurses, etc.) are the first source of information for those facing low vision or vision loss.

State and Area Agencies on Aging

State Agency on Aging offices are located in each state’s capital city, and many states also have local offices. They provide information on:

  • Nutrition and support services
  • Elder rights programs
  • Long-term care
  • Ombudsman programs
  • Legal services
  • Elder abuse prevention

Check your phone book or search online by state and city for “agency on aging.”

State Departments of Health and Social Services (DHSS)

State HHS offices are located in state capitals and often in other cities and towns. They can provide information on:

  • Support and respite services
  • Facilities
  • Financial assistance
  • Regulations and licensing

Check your phone book or search online by state and city for “departments of health and social services.”