We at the BrightFocus Foundation compiled this list of organizations that can help people with age-related macular degeneration.
On this page, you’ll find:
- Caregiving and Caregiver Support
- Eye Care Professional Organizations
- Federal Government Programs and Services
- General Information, Resources and Referrals
- Home Safety and Low-Vision Aid Resources
- Legal Assistance
- Low Vision Organizations
- Print and Audio Materials for the Visually Impaired
- Research and Clinical Trials
- Senior Housing, Long-term Care
- State and Local Resources
Caregiving & Caregiver Support
Aging Life CareTM Association
ALCA was formerly the National Association of Professional Geriatric Care Managers (GCM). Find health and human services specialists to help families care for older relatives while encouraging as much independence as possible. Use the database to find a geriatric care manager.
Caregiver Resource Center (a division of Employee Assistance Professionals, Inc.)
The center provides information on caregiving, employee assistance, and planning for long-term care services.
This support service was created and maintained by registered nurses to provide access to health care information, products, and services.
This online caregiver support group provides information and a directory of support groups.
Family Caregiver Alliance (FCA) and National Center on Caregiving
Online center provides information, education, services, research, and advocacy for those caring for people with chronic, disabling health conditions.
Meals on Wheels America
This national organization provides information on local meal delivery and group meal locations for seniors, at more than 5,000 community-based senior nutrition programs nationwide.
National Adult Day Services Association (NADSA)
Use the website database to find adult day services.
National Caregivers Library
An extensive online library for caregivers provides articles, forms, checklists, and links to topic-specific external resources.
National Center for Assisted Living (NCAL)
National association represents long-term care providers and provides information for consumers about assisted living.
Well Spouse® Association
National association provides peer support and education about the special challenges facing "well" spouses who care for ill spouses.
Eye Care Professional Organizations
American Academy of Ophthalmology
A national membership association of eye doctors provides a searchable database of ophthalmologists and eye specialists by state and locality. The AAO EyeSmart website includes information on eye health and other eye-related topics.
American Optometric Association
An organization of eye care professionals serves patients in nearly 6,500 communities across the country.
Federal Government Programs & Services
Administration on Aging, U.S. Department of Health and Human Services (DHHS)
A starting point for information on aging for elders and families, this federal agency promotes the well-being of older individuals by providing services and programs designed to help them live independently in their homes and communities.
Official benefits site of the federal government provides information on more than 1,000 benefit and assistance programs.
Centers for Medicare and Medicaid Services, U.S. DHHS
This federal website provides the latest information and resources on Medicare and Medicaid.
This federal websites provides an online database of disability resources, including benefits, civil rights, education, employment, housing, health, technology, and transportation.
This searchable directory of state and local area agencies on aging and community-based organizations serves many elder care needs. Spanish-speaking information specialists and language interpretation service for 150 languages are available during business hours.
A DHHS-sponsored online resource on health topics from 1,400 government and nonprofit organizations provides reliable health care information and access to other online sources.
National Eye Institute
Part of the National Institutes of Health, this institute supports eye disease and vision research. The agency develops public and professional education programs to help prevent blindness, reduce visual impairment, and increase awareness of low-vision services and devices.
National Institute on Aging
Part of the National Institutes of Health, this institute conducts and supports biomedical, social, and behavioral research and provides public education to promote healthy aging.
National Library Service for the Blind and Physically Handicapped
The Library of Congress provides free Braille and recorded materials and lends playback equipment to eligible borrowers through a network of cooperating libraries. Books and magazines in recorded form (talking books) or in Braille are delivered and returned by postage-free mail.
Social Security Administration (SSA)
The SSA is the federal agency responsible for providing financial assistance to those who are legally blind or have vision problems that prevent them from employment.
General Information, Resources, & Referrals
All About Vision
Online resource provides consumers with an independent source of trustworthy information on eye health, vision correction options, and eye diseases including cataracts, glaucoma, and macular degeneration.
Alliance for Aging Research
Nonprofit organization advocates for research and provides information on age-related medical discoveries and health topics.
American Association of Retired Persons (AARP)
Nonprofit membership organization serves people 50 and older.
American Federation for Aging Research (AFAR)
Nonprofit supports the science of healthier aging by providing grants to more than 2,800 talented scientists, and provides information on healthy lifestyles, age-related conditions, and diseases and biology of aging.
National Council on Aging
Nonprofit provides information on healthy aging, independent living, and government and private benefits programs, and includes news updates of interest to seniors.
Senior Citizens Bureau
The nonprofit community resource provides information for seniors and their caregivers about government programs, counseling, housing, and more. The website has an online state-by-state directory for many services.
Home Safety and Low-Vision Aid Resources
Part of the U.S. DHHS, this organization provides impartial information on assistive technology and rehabilitation equipment from domestic and international sources.
This company develops and sells screen magnification and screen reading software products for people who are visually impaired.
This company offers a wide variety of items for people who are visually impaired, including computers, talking clocks, kitchen items, magnifying glasses, and closed-circuit TVs.
Enhanced Vision Systems
The business offers a full line of vision tools and magnifiers.
Company provides assistive and adaptive low-vision technology, including portable and desktop video magnifiers, and magnification and screen-reading software.
G. W. Micro
Now part of Ai Squared, this company offers software and hardware solutions for people who are blind and visually impaired.
A service of the Fall Prevention Center of Excellence and funded by the Archstone Foundation, the website provides information on modifying homes to make them safer for people at risk for falls and other injuries, with specifics for individuals, families, service providers, and researchers.
Company designs and manufactures technology solutions, including the SmartView™ video magnifier for people who are visually impaired.
Independent Living Aids, LLC
This business offers a catalog of low-vision products.
This company develops and makes the Magni-CamTM electronic magnifier.
JBliss Low Vision Systems
Company sells software and electronic equipment for portable and at-home magnification of texts and pictures via cameras, scanners, and more.
This company offers a catalog of products for people with low vision and/or impaired hearing.
Business offers a variety of low-vision and home health care products.
This organization provides medical IDs engraved with the person’s membership number, primary medical conditions, and toll-free, 24-hour number for emergency response service. First responders and health professionals call the number to get vital medical information to ensure proper treatment and care. Caregivers are called in an emergency.
MONS International, Inc.
Company offers products for people who are visually impaired, including Braille watches, talking calculators, 4-track recorders, kitchen aids, writing guides, computer software and accessories, greeting cards, and talking scales.
Business sells various types of magnifier attachments to enhance the vision of people who are partially sighted, and produces the VES AutoFocus telescope.
This company sells Braille, low-vision, and speech products from a variety of manufacturers.
American Bar Association (ABA)
National association provides information to help find legal assistance and locate lawyers. Includes specific information about the legal issues of aging.
Website provides news and explanations of Medicaid coverage of long-term care, Medicare benefits, estate planning, guardianship, and other legal issues affecting seniors. It also offers a nationwide network of pre-screened attorneys who focus their practices on helping the elderly.
National Academy of Elder Law Attorneys
Use the database to find an elder law attorney in the private or public sector who deals with legal issues affecting the elderly and disabled.
National Center on Elder Abuse
Sponsored by the federal government, this national resource center is dedicated to the prevention of elder mistreatment. It provides research, training, best practices, news, and resources on elder abuse, neglect, and exploitation.
Low-Vision Rehabilitation Centers
Your ophthalmologist or local hospital can help you locate low-vision rehabilitation centers in your area. They evaluate and train people with low vision and offer devices and services.
American Council of the Blind
This nonprofit provides a wide variety of services to visually impaired people with an emphasis on employment opportunities.
Association for Education and Rehabilitation of the Blind and Visually Impaired
Engaged in the education, guidance, vocational rehabilitation, or occupational placement of the blind and partially sighted, this organization conducts certification programs, maintains job exchange services, and advocates for legislation affecting services to the blind and visually impaired.
The Braille Institute of America
Nonprofit offers free classes, training, and a variety of other services and activities for those with blindness and severe sight loss.
Columbia Lighthouse for the Blind
Nonprofit offers programs that enable the blind or visually impaired to remain independent, including early intervention services, training and consultation in assistive technology, career placement services, comprehensive low-vision care, and rehabilitation services.
Helen Keller Foundation
This foundation strives to prevent blindness and deafness by advancing research and education efforts.
Nonprofit that provides education and vision rehabilitation services, and supports research and advocacy.
Macular Degeneration Support
Website provides information for those with macular degeneration and other retinal diseases, and assistance in forming and running support groups.
National Federation of the Blind
Organization provides advocacy, education, research, technology, and programs encouraging independence and self-confidence for the blind.
The Seeing Eye
Organization breeds and trains guide dogs to help blind people, and trains blind people in how to care, use, and handle guide dogs.
Partnership between the American Foundation for the Blind (AFB) and Reader's Digest Partners for Sight Foundation provides resources for living independently with vision loss.
Print and Audio Materials for People Who Are Visually Impaired
American Printing House for the Blind
National nonprofit creates educational, workplace, and independent living products and services for people who are visually impaired.
Associated Services for the Blind and Visually Impaired
Nonprofit provides Braille, tape, and large-print materials for people who are blind and visually impaired.
Books on Tape
Company produces, rents, and sells unabridged audio books on CDs and as audio downloads.
International Association of Audio Information Services
This worldwide organization of more than a hundred independent Audio Information Services provides printed material in audio form.
Formerly known as Recording for the Blind & Dyslexic (RFB&D), this organization provides free recorded educational books for those with blindness, visual impairment, dyslexia, or other learning disabilities. The master library contains more than 75,000 titles.
This free nationwide telephone newspaper service for the blind and visually impaired is offered by the National Federation of the Blind.
National Library Service for the Blind and Physically Handicapped
Sponsored by the U.S. Library of Congress, this service provides free Braille and recorded materials and lends playback devices to eligible borrowers through a network of cooperating libraries. Books and magazines in recorded form (talking books) or in Braille are delivered and returned by postage-free mail.
Research and Clinical Trials
CenterWatch Clinical Trials Listing Service
This service provides information on clinical research, including listings of active industry and government-sponsored clinical trials, research on new drug therapies, and drugs recently approved by the U.S. Food and Drug Administration.
National Institutes of Health, National Eye Institute, National Institute on Aging
ClinicalTrials.gov provides patients, their family members, and the public with easy and free access to information on clinical studies for a wide range of diseases and conditions. NEI and NIA highlight clinical trials sponsored by those institutes.
Free, secure registry brings together people who are trying to find research studies with researchers who are looking for people to participate in their studies.
Housing for Low Vision Seniors
A Place for Mom
Senior Living Advisors help people find senior living arrangements and information about issues that affect caregivers.
Formerly the American Association for Homes and Services for the Aging, this network of aging services, state partners, and hundreds of businesses, consumer groups, foundations, and research partners provides information about services and care facilities for elders.
Commission on Accreditation of Rehabilitation Facilities
This organization accredits rehabilitation facilities, has a searchable database of accredited providers, and provides guidance for accessing family, health, senior and aging, and employment services.
Organization provides trustworthy information on caregiving, long-term care, and housing in the “After 50” section of its website.
Company provides searchable directory for senior housing and residential care options.
Business provides a directory of senior housing options in the United States, Canada, and the United Kingdom.
Website provides searchable list of home health care and senior housing options by state and area, with consumer ratings and reviews.
State and Local Resources
Health Care Professionals
Health care providers (physicians, eye doctors, nurses, etc.) are the first source of information for those facing low vision or vision loss.
State and Area Agencies on Aging
State Agency on Aging offices are located in each state’s capital city, and many states also have local offices. They provide information on:
- Nutrition and support services
- Elder rights programs
- Long-term care
- Ombudsman programs
- Legal services
- Elder abuse prevention
Check your phone book or search online by state and city for “agency on aging.”
State Departments of Health and Social Services (DHSS)
State HHS offices are located in state capitals and often in other cities and towns. They can provide information on:
- Support and respite services
- Financial assistance
- Regulations and licensing
Check your phone book or search online by state and city for “departments of health and social services.”
The organizations listed above are not affiliated with BrightFocus. BrightFocus is not responsible for the content of these websites and does not endorse or recommend any particular program offered by these organizations.