Advocate for Change:
Speak Out to Stop Vision Loss
The global cost of vision loss for the 733 million people living with low vision and blindness worldwide is an estimated $3 trillion US dollars. Studies show that people with visual impairment were deprived of the equivalent of 118 million years of healthy life due to disability and premature death in 2010. If current trends continue, this health burden is expected to rise to 150 million disability-adjusted life years in 2020.
You can help transform these statistics and improve people's lives worldwide. Here are some ways to advocate for change. Do as little or as much as you choose. Every act helps.
First Steps to Stop Macular Degeneration
First Steps to Stop Glaucoma
- Sign up now to be a Stop Vision Loss Advocate. Receive breaking news and action alerts with information on the latest scientific discoveries and any Calls to Action.
- Read and download publications and fact sheets on glaucoma, or request copies by calling 1-800-948-3244.
- Visit the glaucoma section of the BrightFocus website.
Share Information with Your Friends and Community
- Share materials with others at health fairs, support groups, places of worship, or local community or political events. Offer to staff a booth at local events and share the information there.
- Follow us on Facebook, Twitter, and other social media sites. Share what you learn with friends, and urge them to take action when needed.
- Share a personal story about you or a loved one living with low vision. Stories are powerful tools for educating the public on the urgency of finding a cure.. Share your story online, by email, or phone call at 1.800.948.3244.
- If there is a news story on vision loss in your local paper, write a Letter to the Editor. Discuss the need for more vision research and resources. You'll find instructions on sending a Letter to the Editor, and the maximum word count, on the newspaper's editorial page or website. Review the BrightFocus fact sheets for messages to incorporate.
Advocate for Policy Changes: Let Your Federal and State Legislators Hear Your Voice
- Congress makes important decisions on research funding and federal health programs like Medicare. Know who your U.S. Representative and two U.S. Senators are, and their stand on issues, by visiting www.house.gov and www.senate.gov. From there, you can find the legislators’ official websites, with information on their legislative record, upcoming community forums, and how to reach them by phone, letter, or email.
- Communicate with your U.S. Representative or Senators by sending a message via phone or email, or requesting a meeting at their district or state office. If your meeting is with a staff person to the legislator, don’t be disappointed: key staffers can have great influence with, and may know an issue better than, the Member of Congress. After the meeting, send a thank you letter. Offer to be an information resource for them in the future.
- Many decisions on community services and family supports are made at the local or state level. Know which elected officials represent you by checking the blue government pages of your phone book, or checking your State Legislature website. Learn the officials’ views through their website information, and save their contact information.
- Attend a Town Hall or other local event sponsored or attended by your federal, state, or local representatives. (You may find dates and other event information on their websites.) Ask the officials about their position on ending eye disease, and share your story.
BrightFocus Co-Hosts World Sight Day 2012
- Congressional Briefing Event Highlights Collaborations In Vision Research and Blindness Prevention Activities
On October 11, World Sight Day 2012, thirteen domestic and international organizations from the vision community, including the BrightFocus Foundation, joined Vision 2020/USA in hosting a U.S. Congressional Briefing entitled From Vision Research to Vision Loss Prevention. Read the full press release.
The FDA Approves Eylea (Aflibercept) For Wet Macular Degeneration
- The U.S. Food and Drug Administration (FDA) on November 18 approved the new drug application for aflibercept ophthalmic solution (trade name EYLEA), a new product for treatment of wet age-related macular degeneration (wet AMD). The action follows the unanimous recommendation of the drug's approval, issued last June by the FDA's Dermatologic and Ophthalmic Drugs Advisory Committee.Did you know that the FDA is expected to decide whether or not to approve a new treatment for macular degeneration? Read our full media advisory:
- Read here about current treatments on the market.
- Read the testimony given at the FDA hearing June 17, 2011 by BrightFocus’s Dr. Guy Eakin.
BrightFocus Thanks the United States Department of Defense for Advancing Vision Research
- In this time when research for vision faces unprecedented obstacles, we recognize the Department of Defense's commitment to eye research. The impact of these efforts will not end on the battlefield, as it will advance knowledge about glaucoma and retinal disorders that may improve the lives of veterans and civilians alike. Read more...
Tell Congress Now: Fully Fund Vision Research
As a Stop Vision-Loss Advocate, you can speak out for eye and vision research funding.
Congress is considering funding bills that would cut or restrict funding for the National Eye Institute (NEI) of the National Institutes of Health (NIH). The NEI supports much-needed eye and vision research.
Tell Congress to fully fund the NEI.
Thank you for your commitment to stopping vision loss.
Did You Know?
- The number of people living with macular degeneration today is similar to that of people living with cancer or who are cancer survivors.
- The worldwide cost of visual impairment due to advanced age-related macular degeneration alone is US$343 billion including US$255 billion direct health care costs.
- Globally, 60.5 million had glaucoma in 2010. Given the aging of the world's population, this number may increase to almost 80 million by 2020.
- Glaucoma costs the U.S. economy $2.86 billion every year in direct costs and productivity losses.
- Total U.S. health care expenditure, including Medicare, Medicaid, long-term care, loss of wages, and other indirect costs for low vision (including macular degeneration and glaucoma) is $51 billion, according to 2007 figures.
Read more statistics concerning macular degeneration and glaucoma.
Send us your questions or suggestions at email@example.com.
Donate to Macular Degeneration Research or National Glaucoma Research…and encourage others to.
Last Review: 04/29/13