My mother, who has early Alzheimer’s disease, was placed in a “care home” 1 year ago. Is it harmful or dangerous for me to take her out of the home for the day (or perhaps a day and a night) as long as she is constantly supervised by my family? I feel very sad for her being in a virtual prison as she is still a very lively character who holds a good conversation. All I am trying to achieve is to bring some light and joy into her life, but I am meeting resistance from other family members. [ 08/26/10 ]
It is fine to take your mother on outings so long as you try to adhere to a general schedule. Alzheimer's disease patients do best when there is a regular routine or schedule that they follow each day, such as for meals, waking, nap or bedtimes, bathing, toileting, and other activities. Check with your mother's care home to determine the schedule they have her on, and if you should take her out for the day, try to do the things she would normally do within the scheduled times. Better still, with the help of her care facility you can build in a short outing as part of regular schedule. For example, you could arrange to take her for a 1-4 hour outing a few times a week.
Overnight outings may still be feasible while your mother is in the early stages of the disease so long as the care facility does not have a strong objection to the idea. Talk to the facility first to find out if she is sleeping well at night—that is, does she have insomnia, does she wander at night, etc. If you should choose to have your mother overnight at your home, pay close attention to her behavior for signs of agitation. Again, stick to whatever routine the facility uses for dinner and bedtime. Even with a routine, your mother may become disorientated in the evening and become anxious and upset. If she has a tendency to get up in the middle of the night and wander, this could also pose a safety problem. As the disease progresses, however, it would probably be best for her to stay in her own bed at the facility each night. Too much disruption in a dementia patient's schedule can cause unnecessary anxiety and stress.
My wife is bedridden and cannot communicate with family members. We have to move her from the bed to a geriatric chair because she is no longer able to stand up. Is this related to the progression of Alzheimer’s disease? Sometimes she calls out my name and other times she does not. I just wonder if she hears us when we tell her that we love her and pray out loud for her. [ 08/02/10 ]
In the later stages of Alzheimer's disease, a person can become immobile. Your wife's inability to stand may therefore be directly related to the progression of the disease, or it could be caused by another unrelated condition altogether. Unfortunately, in these neurodegenerative diseases, it is sometimes impossible to clearly pinpoint which disease causes which ailment. Regardless, it is important that her position (be it sitting or lying down) is changed regularly to prevent sores from developing. Also, to the best of her ability, try to encourage your wife to do some stretches and arm and leg lifts from a seated position. You will have to help guide her in the movements, but just go slowly and let her try to do as much as she can on her own. The goal is to keep her muscles active to slow muscle deterioration. Any physical activity is good—it does not need to be rigorous and it is actually better if she does not overexert herself.
When an Alzheimer's patient becomes unable to communicate, it is essential to continue to provide him or her with human contact in any form. Even though it may seem as if your wife cannot hear or respond to you, you presence near her is likely a calming influence. Many caregivers are certain that some of what they say in the presence of their non-communicative loved ones gets through. So continue to talk to her and tell her you love her. Also, don't forget about non-verbal communication. Touch is very important too, so hold her hand, gently stroke her arm or brush her hair, or give her a gentle shoulder massage. It may not seem like much to you, but these little things can improve her mood and affect her overall well-being.
My mother-in-law has Alzheimer’s disease. She is in the mild-to-moderate stage of the disease. When we go to family functions, (weddings, for example), she may wish people a happy Easter. Sometimes, after arriving at an event, she just wants to go home. Should she stop going to these type of gatherings or is it better for her to go so that she will have some social interaction and brain stimulation. [ 07/30/10 ]
Social gatherings, even if there are only a handful of people, can be overwhelming and sometimes frightening for a person with Alzheimer's disease. The person can become confused and over-stimulated by the noise and commotion, which can lead to anxiety and agitation. While social interaction in general is good, it is best to try to tailor the interaction to suit your mother-in-law's condition. Therefore, perhaps going to fewer such events would be warranted, or only attending those events with smaller gatherings. Before you accept an invitation on behalf of your mother-in-law, make sure the event is at a time that is good for her (i.e., it does not interfere with naps, or is too late at night). Typically, Alzheimer's patients are better in the morning and early afternoon, so an evening event may be more challenging for them.
When you arrive at the event, find a quiet place where you can take your mother-in-law. This will be her little sanctuary away from the noise and confusion of the party, particularly if there are children present. If the event is at someone's home, for example, ask in advance if a separate room or secluded area can be made available for your mother-in-law to sit in. If people want to visit with your mother-in-law, bring them to her a few at a time. Even if you think that your mother-in-law will know who these visitors are, be sure to introduce each one and provide some details or a brief description of who they are. For example, you can say “This is Cathy, your niece. We stayed at her house last summer and had a good time swimming in the lake.” Not only will this help to jog your mother-in-law's memory about who the person is, but it can also make for an easy conversation starter.
Lately, my 84-year-old mother, who lives in an Alzheimer’s disease center, will rest her head on the table for very long periods of time, but she is not sleeping. Her head is resting on the table for such a long time that she gets lines in her forehead. Why does she do this? [ 07/29/10 ]
Alzheimer's disease can often cause a person to become apathetic or depressed, which can also lead to the person becoming lethargic and easily tired. It is possible, for instance, that your mother is mildly depressed, and therefore prefers to sit in this position. It is equally possible that your mother simply finds this position peaceful or calming, and may rest her head on the table as a way to relax or even “meditate,” sort of like a coping mechanism. Maybe if there are people or commotion around her and she does not feel like being social, she may just put her head down as a way to communicate her desire to be left alone. Sometimes, however, Alzheimer's disease simply causes people to have odd behaviors that they did not have before the disease—this may be one of those unexplained behaviors.
Try talking to your mother when she is in the head-on-table position. Does she communicate with you readily or is she non-responsive? Does she keep her head on the table or pick it up when you start talking? Ask her about it. Is it something that is enjoyable to her (the smoothness or coolness of the table) or is it because she is bored, tired, afraid, etc.? She may not tell you directly, but there may be some emotion underlying her response which can help you determine why she does this.
If you think that she seems depressed or apathetic, speak to her primary care physician. A doctor's evaluation could help to determine whether or not she is truly depressed, and whether she could benefit from anti-depressant or anti-anxiety medication.
My father-in-law is in the early stages of Alzheimer’s disease. He and my mother-in-law are in their mid-seventies and currently live in a beautiful condo, but are now thinking of purchasing a home. Their children are concerned that a change of residence and all the added responsibilities of owning a house again will only aggravate the disease. What do you think? [ 07/28/10 ]
The condo is probably better for an older couple who do not need the added responsibilities of maintaining a home and yard. However, is there a reason why they do not think the condo is appropriate for them anymore? Are they worried about noise issues (from them or from their neighbors)? Is it a safety issue (e.g., too many stairs or balconies, too close to a busy highway, etc.)? Do they want something more aesthetically pleasing (e.g., a garden and small yard of their own)? Or do they want to be closer to family? Try to determine what the true reason is for their desire to move. There may be a way to fix their concerns without them having to move homes.
If there is no real way to fix the issue, or if they are determined to move out of their current condo, you may want to suggest an alternative: an assisted living community. Residences in these communities come with the piece of mind that there is always someone around to help out with your father-in-law if your mother-in-law is unavailable or if he requires more care than she can reasonably provide (particularly as the disease progresses). Plus, there is the added benefit of having many of their peers around to socialize with.
If they are going to move, it is best that they do so sooner rather than later, while your father-in-law is still in the early stages. While it is possible to move someone in the later stages of the disease, it is certainly more challenging and upsetting to the individual.
My wife suffers from Alzheimer's disease, but is still very mobile. We have lived in our home for 28 years and she never gets lost. My concern is that she may walk away from home while I am in another room. Is there some type of keypad or combination lock that could be installed to a common passage door or sliding door? I have checked the local stores and have not found anything. [ 07/20/10 ]
There are many such keyless devices available that range in price from under $100 to over $700 depending on the features. You can search for them through an online shopping site such as eBay or NexTag, or simply search for “keypad door lock” or “keyless door lock” in your favorite search engine. Alternatively, you can contact a locksmith in your area who can provide recommendations and install the device for you.
My wife, who is 84 years old, has had Alzheimer’s disease for about 6 years. She is still living at home and I am her primary caregiver. I also receive help for about 5 hours each day from an independent caregiver. Lately, my wife seems to stay in bed for 16 hours each day (8 p.m. until noon the next day). She then sits and watches TV most of the time when she is awake. She eats well and has no other medical problem. She takes Namenda, Aricept, Vesicare, Lexapro and Crestor. Should I be concerned? [ 07/18/10 ]
Alzheimer's disease can cause a patient to have decreased energy, such that they sleep quite a lot and still feel tired all the time. Some patients tire much more easily, and find that they no longer can be as active as they once were. Patients can also become apathetic or depressed, which can cause them to lose interest in daily activities. Sometimes, however, this lethargy can be a side-effect of one or more of the medications being taken. For example, one of the commonly reported side effects of Lexapro is sleepiness. Therefore, you may want to contact your wife's primary care physician to let him or her know what is going on. Perhaps an adjustment to her medications may help.
In the meantime, make sure your wife gets exposure to bright light (or sunshine) during the day and dim, calming lighting in the late afternoon and evening. This can help to keep her internal clock set correctly so that, ideally anyway, she will want to sleep at night and stay awake during the day. You can also encourage your wife to perform some sort of physical activity during the day, as exercise can aid in establishing good sleep patterns.
I am stressed, depressed, anxious, exhausted and feeling guilty from taking care of my husband, who has Alzheimer’s disease. Where can I find help for my poor sleeping patterns, aching body, stomach problems and my foul mood? I already exercise, read, have friends and take anti-anxiety medications. Could it be physical? Am I going crazy? Should I seek the help of a psychiatrist, psychologist or hypnotherapist? My medical doctor wants me to take more medications but I am concerned that I will become addicted. [ 07/16/10 ]
Being a full-time caregiver can be a difficult job that is oftentimes frustrating and thankless. You are not going crazy, you are just feeling overwhelmed. It is great that you do find some time to exercise and do some things for yourself, but it sounds like you could benefit from some more help and time off.
First, please find a caregiver support group in your area and talk to them. Other caregivers have experienced, or are experiencing, similar problems, stress and emotions, and therefore are in the best position to relate to your situation. You can search for Alzheimer's caregiver and patient support groups in your area by visiting our "Resources" section, such as under the Caregiving and Caregiver Support heading in "Helpful Organizations." It is fairly common for caregivers to feel guilt that they are not doing enough, or that they should be giving more or being more tolerant, etc. Just keep in mind that you are only human and you are doing your best. Caregiving, though overall rewarding in the respect that you are caring for your loved one, can be very challenging on a day to day basis, and sometimes it's hard to keep the big picture in focus.
Therefore, I would strongly recommend that you consider getting some respite care help for your husband. Respite care workers can come to your home for a few hours a week (or whatever you arrange) and relieve you of your caregiving responsibilities. Use this time to relax and recharge in whichever way you like best. Alternatively, if your husband is still capable of leaving the house and interacting with others, there may be senior centers in your area which can take your husband for a few hours a day. Don't be afraid to ask for help from family and friends as well. Be specific about what you might want help with—they may be willing but aren't sure how best to help, so you will need to let them know exactly what it is that you could use help with.
Your local Area Agency on Aging (AAA) Eldercare Locator can connect you to helpful services in your area, including respite care options. Click on the above link to find the phone number of your local AAA or call 1-800-677-1116.
Finally, it couldn't hurt to be evaluated by a therapist, psychiatrist or psychologist independent of your medical doctor. It is possible that you could be suffering from mild depression, which could be causing your sleep problems, body aches, and mood swings. While there are antidepressants that could be helpful, there are also non-drug options such as talking therapy. If you don't feel comfortable talking to a therapist, then find someone whom you can “unload” on when you feel fed up at home—such as a friend, clergy, or close relative.
Disclaimer: The information provided here is a public service of the BrightFocus Foundation and should not in any way substitute for the advice of a qualified healthcare professional; it is not intended to constitute medical advice. Please consult your physician for personalized medical advice. BrightFocus Foundation does not endorse any medical product or therapy. All medications and supplements should only be taken under medical supervision. Also, although we make every effort to keep the medical information on our website updated, we cannot guarantee that the posted information reflects the most up-to-date research.
Some of the content in this section is adapted from other sources, which are clearly identified within each individual item of information.
Last Review: 04/29/13