Helpful Resources for Alzheimer's Disease

Resource for latest Alzheimer's disease research news, prevention, healthy choices, treatment, and caregiving.

General Resources and Referrals

Alliance for Aging Research

Advocates and provides information on age-related medical discoveries and health topics.
www.agingresearch.org
(202) 293-2856

Alzheimer's Disease Education Referral Center (ADEAR), National Institute of Aging, National Institutes of Health

Offers information for people with Alzheimer's disease, their families and professionals, including information on clinical trials.
www.nia.nih.gov/alzheimers
1-800-438-4380

American Association of Retired Persons (AARP)

Membership organization for people over 50; informative website.
www.aarp.org
1-888-687-2277 (1-888 OUR AARP)

American Federation for Aging Research (AFAR)

Offers information on healthy lifestyles, age-related conditions, and diseases and biology of aging.
www.afar.org/infoaging
1-888-582-2327 and (212) 703-9977

American Occupational Therapy Association

Provides information about occupational therapy practitioners and how they help older adults to safely do the things they want to do their homes, their workplaces, their communities, or in facilities.
www.aota.org/About-Occupational-Therapy/Patients-Clients/Adults.aspx
(301) 652-6611

Nature Education

Their "Spotlight on Alzheimer's Disease" web page is a scientifically written resource, which is part of their free science library and learning website.
www.nature.com/scitable/spotlight/alzheimer-s-disease-18608693

National Council on Aging

Provides information on healthy aging, maintaining independence and government and private benefits programs; includes news updates of interest to seniors.
www.ncoa.org
(202) 479-1200

National Institute on Aging, National Institutes of Health

Conducts and supports biomedical, social and behavioral research and public education to promote healthy aging. Website has database with information on over 250 national organizations that help older people.
www.nia.nih.gov
www.nihseniorhealth.gov
www.cc.nih.gov
(301) 496-1752
TTY 1-800-222-4225

National Long Term Care Ombudsmen Resource Center

Under “Ombudsmen Locator” find contact information by state on ombudsmen, Offices on Aging, nursing home licensure, Medicaid, and other state resources.
www.ltombudsmen.org
(202) 332-2275

Palliative Dementia Care Resources

Provides resources and information to help people make decisions about end-of-life care and services for individuals with dementia.
www.pdcronline.org

Senior Citizens Bureau

Provides information for seniors on government programs, counseling, housing, etc. Includes a state-by-state directory for many services.
www.seniorcitizensbureau.com
1-866-408-0824

State and Local Resources

Healthcare Professionals

Healthcare providers (physicians, nurses, etc.) are the first source of information for those facing health issues.

State and Area Agencies on Aging

Each state and territory in the U.S. has an Agency on Aging office located in its capital city, as well as local offices. Check the phone book or online by state and area. They provide information on nutrition and support services, elder rights programs, long term care, ombudsman programs, legal services, outreach and elder abuse prevention.

State Departments of Health and Social Services

Each state in the U.S. has these departments, as well as local offices. They can provide information on support and respite services, facilities, financial assistance, and regulations and licensing. Check the phone book or online by state and locality.

Caregiving and Caregiver Support

Caregiver Resource Center (a division of Employee Assistance Professionals, Inc.)

Provides information on caregiving, planning for long term care services and employee assistance.

www.caregiverresourcecenter.com
(203) 861-9833

CarePathways

Created and maintained by RNs to provide access to healthcare information, products, and services.

www.carepathways.com
1-877-521-9987

Children of Aging Parents (CAPS)

Provides information and materials for adult children caring for their older parents.

www.caps4caregivers.org
1-800-227-7294

Eldercare Online

An online caregiver support group with information and a directory of support groups.

www.ec-online.net

Family Caregiver Alliance, National Center on Caregiving (FCA)

Information, education, services, research and advocacy for those caring for people with chronic, disabling health conditions.

www.caregiver.org
1-800-445-8106

Latino Alzheimer's & Memory Disorders Alliance

Empowers Hispanic and Latino caregivers and families of those afflicted with Alzheimer's disease and memory disorders by providing education, skill building training and support programs. Also provides training programs to healthcare providers who work with the Hispanic and Latino communities.

www.latinoalzheimersalliance.org
(708) 714-4268

Meals on Wheels

Provides information on local meal delivery and congregate meals for seniors.

www.mealcall.org

National Adult Day Services Association (NADSA)

Use the website database to find adult day services.

www.nadsa.org
1-877-745-1440

National Association of Professional Geriatric Care Managers (GCM)

Health and human services specialists who help families care for older relatives while encouraging as much independence as possible. Use the database to find a geriatric care manager.

www.caremanager.org
(520) 881-8008

National Caregivers Library

An extensive online library for caregivers with articles, forms, checklists and links to topic-specific external resources.

www.caregiverslibrary.org
(804) 327-1111

National Center for Assisted Living (NCAL)

Represents long term care providers; contains information for consumers on assisted living.

www.ncal.org
(202) 842-4444

Safety & Home Healthcare

Alzheimer's Disease Education and Referral Center (ADEAR), National Institute of Aging, National Institutes of Health

This section of the ADEAR website offers information on Alzheimer's-related safety issues, and includes a room-by-room safety checklist (also available as a print publication)

www.nia.nih.gov/Alzheimers/Publications/
1-800-438-4380

AllegroMedical.com

Offers a variety of home healthcare products, including safety products.

www.allegromedical.com
1-800-861-3211

The Alzheimer's Store

Offers safety products to deal with wandering and other Alzheimer's safety issues.

www.alzstore.com
1-800-752-3238

Fisher ProductsOffers 

www.fishershops.com
1-866-804-4042

MedicAlert Foundation International

Offers emblems and chains engraved with the person's membership number, primary medical conditions and the toll-free 24-hour Emergency Response Center number. This information enables personal identification, relays key medical facts and notifies the person's family contacts.

www.medicalert.org
1-888-633-4298, (209) 668-3333 (from outside the U.S.)

Federal Government Programs and Services

Alzheimers.gov

Provides free information about Alzheimer's disease and related dementias from agencies and organizations with expertise in these areas.

www.alzheimers.gov
1-877-696-6775

Administration on Aging, U.S. Department of Health and Human Services

A starting point for information on aging for elders and families.

www.aoa.gov
(202) 619-0724

Alzheimer's Disease Education and Referral Center (ADEAR), National Institute of Aging, National Institutes of Health

Provides current Alzheimer's disease information and resources from the National Institute on Aging (NIA).

www.nia.nih.gov/alzheimers
1-800-438-4380

Centers for Medicare and Medicaid Services, U.S. Department of Health and Human Services

Offer latest information and resources on Medicare and Medicaid.

www.cms.hhs.gov
1-800-633-4227

Disability.gov

Provides people with disabilities information and available government programs on benefits, civil rights, community life, education, employment, housing, health, technology and transportation.

www.disability.gov
1-800-FED-INFO (1-800-333-4636)

Eldercare Locator

Provides resource information for older adults in any U.S. community; referrals to state and local area agencies on aging and community-based organizations that serve many elder care needs; English and Spanish speaking information specialists.

www.eldercare.gov
1-800-677-1116

GovBenefits.gov

A partnership of federal agencies that provides access to government assistance programs.

www.govbenefits.gov
1-800-FED-INFO (1-800-333-4636)

Medicaid

Program funded by federal and state governments to assist those who do not have the resources to pay for healthcare. Check the phonebook or online by state.

Medicare

Federal program that pays for certain healthcare expenses. Call 24:7 for assistance; English and Spanish-speaking customer service.

www.medicare.gov
1-800-633-4227

Medline Plus

Service of the U.S. National Library of Medicine and the National Institutes of Health that provides information on many health topics.

www.medlineplus.gov

National Clearinghouse for Long-Term Care Info, U.S. Department of Health and Human Services

Offers information on long term care, planning and payment strategies.

www.longtermcare.gov
(202) 619-0724

National Institute of Neurological Disorders and Stroke, National Institutes of Health

Provides general information on Alzheimer's disease, websites and some publications on its Alzheimer's disease page.

www.ninds.nih.gov
1-800-352-9424

Social Security Administration

Social Security is a federal program that provides retirement and disability benefits.

www.ssa.gov
1-800-772-1213

Long-Term Care and Living Options

A Place for Mom

Includes information about issues that affect caregivers and provides a search engine to find eldercare advisors.

www.aplaceformom.com/alzheimers-care
www.alzheimers.net
1-877-666-3239

American Association for Homes and Services for the Aging

Provides information about and contains a directory of services and care facilities for elders.

www.aahsa.org
(202) 783-2242

Commission on Accreditation of Rehabilitation Facilities

Offers advice on finding an accredited rehabilitation facility.

www.carf.org
1-888-281-6531

Helpguide.org

“Senior Housing and Care” section of website provides information on long term care and housing options.

www.helpguide.org

HousingForSeniors.com

Connects interested seniors and their families with senior living options.

www.housingforseniors.com

seniorDECISION.com

Offers a list of home health care and senior housing options by state and area with consumer ratings and reviews.

www.seniordecision.com

SNAPforSeniors™

Provides a senior housing options guide.

 http://providers.snapforseniors.com/
1-888-651-7627

Research and Clinical Trials

Alzheimer's Disease Clinical Trials Database

A joint project of the U.S. Food and Drug Administration and the National Institute on Aging (NIA) maintained by the NIA's Alzheimer's Disease Education and Referral Center; database of clinical trials on Alzheimer's disease and dementia underway at sites throughout the U.S.

http://www.alzheimers.org/clinicaltrials/search.asp
1-800-438-4380

Alzheimer Research Forum

Lists trials of potential treatments for Alzheimer's disease and has a section seeking trial participants.

www.alzforum.org

CenterWatch Clinical Trials Listing Service

Provides information about clinical research, including listings of active industry and government-sponsored clinical trials, research on new drug therapies and drugs recently approved by the Food and Drug Administration.

www.centerwatch.com
1-866-219-3440

National Institute on Aging, National Institutes of Health

Provides information on government-sponsored human trials and recruitment with locations, purpose, eligibility requirements, and phone contacts.

www.nia.nih.gov/HealthInformation/ClinicalTrials.htmwww.clinicaltrials.gov
(301) 496-1752

ResearchMatch

ResearchMatch is a free and secure registry that brings together people who are trying to find research studies and researchers who are looking for people to participate in their studies.

www.researchmatch.org

Hospice Care

Caring Connections

Provides information on advanced care planning, financial matters, caregiving and hospice care.

www.caringinfo.org
1-800-658-8898; Multilingual Helpline: 1-877-658-8896

National Association for Home Care & Hospice

Click on “Consumer Information” to access database of local hospice providers.

www.nahc.org
(202) 547-7424

National Hospice and Palliative Care Organization

Use website to locate member hospices.

www.nhpco.org
(703) 837-1500

The above organizations are not affiliated with the BrightFocus Foundation. In addition, BrightFocus is not responsible for the content of these websites, and does not endorse any particular programs offered by these organizations.